McKinley Sovey is the youngest person to undergo this type of gene therapy. Her parents Parker and Julie Sovey have been watching her progress.
gene therapy
Successful Experiments Leads to Possible Cure for Day Blindness
Successful experiments on a herd of sheep six years ago leads to US clinical trials of the treatment to help people suffering from day blindness.
Biotech’s CEO Suggest Gene Therapy for Blindness Could Cost $1 million
Early next year, Spark Therapeutics Inc.’s gene therapy Luxturna could become the first such treatment for an inherited condition to win approval in the U.S., bringing with it new hope for patients with a rare form of childhood blindness.
At the same time, the one-time treatment will likely command a premium price, putting the promise of gene therapy in stark relief to questions of affordability and access.
Spark has yet to determine a price for its treatment. Yet recent comments from the biotech’s CEO suggest Luxturna’s cost could approach the $1 million mark, which would make the gene therapy one of the most expensive medicines on the market.
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